Nebraska - STOMP Out Epilepsy and SUDEP

Nebraska - STOMP Out Epilepsy and SUDEP

Saturday, September 19, 2020  to September 27, 2020   •  5k

Address:

3901 W Norfolk Avenue, Norfolk, NE    view map

Registration closed:

Online registration is closed, please register at the event.  We welcome walk-up registrations and hope you will join us.

Description:

Join us as at the Fountain Point Medical Community in Norfolk, Nebraska on September 19, 2020 for the 1st Annual STOMP Out Epilepsy and SUDEP Awareness Walk/Run.  We will host a self timed timed 5K walk/run.

Some fees include a #STOMPNebraska tshirt. Check-in and walkup registration begins at 7:30 AM, walk/run begins at 9:00 AM. No pets/dogs allowed, sorry. Service dogs are welcomed and encouraged.

Stay up to date on details by joining our Facebook event page!

Big announcement – It has been decided that every registered adult STOMPer (21+) (all locations, including virtual), whether it be a registered volunteer at a live event or a registered attendee, will be entered into a drawing to win a Chelsea’s Wish Trip for up to (4) for the 2021 Epilepsy Awareness Educational Day and Expo (EADDL) at Disneyland which will take place the first week of November, 2021. This is open to anyone, even past Chelsea’s Wish winners.

The winner will receive airfare for up to (4). Airfare is provided within the Continental United States only. If airfare is not required, CHF will provide a $500 Visa Gift Card for travel to and from Anaheim, CA

This Chelsea's Wish trip will also include a day at the Epilepsy Awareness Educational Expo (it's actually free), admission for up to (4) to Disneyland on EADDL and to California Adventure Park the following day. This wish trip includes (4) nights' accommodations and a Meet and Greet event so everyone can become acquainted. Transfers to and from the airport while in CA and 3 days transportation to and from the Disneyland property are part of this package.

The winner will be announced on October 1, 2020.

Funds raised through this event provide financial assistance for fully-trained seizure-response dogs, tangible life-saving movement monitors for those in need and wish trips to Epilepsy Awareness Educational Expo and Day at Disneyland.

Want to fundraise to help CHF with their mission? We would be so grateful!

Features:

 T Shirt  - view tshirt

 Food and Drinks

 Music

 Kids' Activities

 

Parking:

Plenty of free parking.

About us

The Chelsea Hutchison Foundation is a non-profit corporation formed to provide help and support to individuals, particularly children and young adults, who have epilepsy. Chelsea touched many lives during her short 16 years here and we are amazed at how many people she continues to touch through the foundation even after her passing.  Her generous heart longed to see love and care come to others.

In her memory The Chelsea Hutchison Foundation is designed to assist people living with Epilepsy.  Funds raised by this Foundation provide grants for seizure-response dogs and epilepsy monitors for those in need, educate the public about SUDEP (Sudden Unexpeccted Death in Epilepsy), and provide support to those who have been affected by SUDEP.  The Chelsea Hutchison Foundation exists to raise awareness of SUDEP and to grant comfort, hope and positivity to individuals and families living with epilepsy.  To date, The Chelsea Hutchison Foundation has had the privilege of providing 133 seizure-response dog grants and has provided over 950 life-saving night-time and day-time movement monitors for those in need.  We have awarded 82 families with wish trips to the one-of-a-kind Epilepsy Awareness Expo and Day at Disneyland. The Expo offers a wealth of information and exposure to professionals, treatment options, education and hope.   

You may ask why we provide grants for these items.  These monitors, while life-saving, are not covered by any insurance companies.  Seizure response service dogs are expensive and most of our families have to raise significant money to obtain one.  Imagine caring for a loved-one with epilepsy 24/7 and being afraid to sleep for fear they might miss a seizure, or worse yet, THAT seizure that is fatal.  Chelsea’s family believes strongly that if they had known to monitor Chelsea at night – and had the means to afford one of these expensive items – their outcome may have been different.  Chelsea’s first nocturnal seizure took her life.

During the 6 years that Chelsea had seizures, no one ever told the Hutchisons that a seizure could take her life other than through an accidental fall or drowning. As a result of that omission, The Chelsea Hutchison Foundation informs those living with epilepsy of the risks and raises awareness of SUDEP so that no other families are blind-sided. For more information, please visit our website at www.ChelseaHutchisonFoundation.org or contact us directly at info@ChelseaHutchisonFoundation.org

Registration info:

Some fees guarantee an event tshirt if registering before August 15, 2020.  We always order more, but after that, tshirts and t-shirt sizes are subject to availability. Walk Day Registration is $35 Adult (13 and up) and  $20 Children (7-12).  Service dogs welcomed and encouraged, but pets are strictly not allowed.


Location for virtual tshirt location to be announced.

Options:

 

Online registration is closed, please register at the event.  We welcome walk-up registrations and hope you will join us.

 

 

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