NEW JERSEY - Virtual STOMP Out Epilepsy and SUDEP 2020

NEW JERSEY - Virtual STOMP Out Epilepsy and SUDEP 2020

Saturday, September 26, 2020  to September 26, 2020

Address:

, NJ

Description:

Join us virtually wherever you are on September 26, 2020 for the 1st New Jersey Annual STOMP Out Epilepsy and SUDEP Awareness Walk/Run. Register online and we will provide the tshirt and bring your friends. Let's make this the biggest STOMP ever!

Funds raised through this event provide funding for fully-trained seizure-response dogs, life-saving movement monitors for those in need and grant wish trips to Epilepsy Awareness Expo and Day at Disneyland.

Want to fundraise to help CHF with their mission? Set up your fundraising teams by clicking on the "Fundraising" button on the right side of this page. 

Parking:

Plenty of free parking.

About us

The Chelsea Hutchison Foundation is a non-profit corporation formed to provide help and support to individuals, particularly children and young adults, who have epilepsy. Chelsea touched many lives during her short 16 years here and we are amazed at how many people she continues to touch through the foundation even after her passing.  Her generous heart longed to see love and care come to others.

In her memory The Chelsea Hutchison Foundation is designed to assist people living with Epilepsy.  Funds raised by this Foundation provide grants for seizure-response dogs and epilepsy monitors for those in need, educate the public about SUDEP (Sudden Unexpected Death in Epilepsy), and provide support to those who have been affected by SUDEP.  The Chelsea Hutchison Foundation exists to raise awareness of SUDEP and to grant comfort, hope and positivity to individuals and families living with epilepsy.  To date, The Chelsea Hutchison Foundation has had the privilege of providing 133 seizure-response dog grants and has provided over 950 life-saving night-time and day-time movement monitors for those in need.  We have awarded 82 families with wish trips to the one-of-a-kind Epilepsy Awareness Expo and Day at Disneyland. The Expo offers a wealth of information and exposure to professionals, treatment options, education and hope.   

You may ask why we provide grants for these items.  These monitors, while life-saving, are not covered by any insurance companies.  Seizure response service dogs are expensive and most of our families have to raise significant money to obtain one.  Imagine caring for a loved-one with epilepsy 24/7 and being afraid to sleep for fear they might miss a seizure, or worse yet, THAT seizure that is fatal.  Chelsea’s family believes strongly that if they had known to monitor Chelsea at night – and had the means to afford one of these expensive items – their outcome may have been different.  Chelsea’s first nocturnal seizure took her life.

During the 6 years that Chelsea had seizures, no one ever told the Hutchisons that a seizure could take her life other than through an accidental fall or drowning. As a result of that omission, The Chelsea Hutchison Foundation informs those living with epilepsy of the risks and raises awareness of SUDEP so that no other families are blind-sided. For more information, please visit our website at www.ChelseaHutchisonFoundation.org or contact us directly at info@ChelseaHutchisonFoundation.org

Registration info:

Fee guarantees an event tshirt in size ordered if registering before August 15, 2020. We always have plenty, but after that, t-shirt sizes are subject to availability. 

Options:

• Virtual Adult (13 and up) with Tshirt

$25.00    Expires 9/23/2020 11:59 PM

• Virtual Child (7-12) with Tshirt

$15.00    Expires 9/23/2020 11:59 PM

• T-Shirt for Child (6 and under) with Tshirt

$10.00    Expires 9/23/2020 11:59 PM

 

 REGISTER NOW!

 

 

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