With our event now entering a new decade, Miles for Kyle celebrates what began as a family organized effort to rally support for our son, Kyle. Now 11, Kyle continues to amaze and inspire everyone he meets. Our event continues to evolve and this year is no exception. With ever-present concern for Kyle while he sleeps, our family added Ellie, an Australian Labradoodle. Our goal is to train Ellie to alert us if Kyle were to suffer a seizure at night and also serve as visual assistance on his left due to the hemianopsia resulting from his surgery. In researching the benefits of seizure alert dogs, we realized the significant financial burden in purchasing and training these animals.
With this in mind, this year, we are donating all of the funds/proceeds to the Chelsea Hutchison Foundation. This organization was founded as a result of the Hutchison family losing their daughter Chelsea after having a seizure in her sleep. SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. Each year, more than 1 out 1,000 people with epilepsy dies from SUDEP. If seizures are uncontrolled, the risk of SUDEP increases to more than 1 out of 150. This organization exists to raise awareness of SUDEP and also to provide grants for helping families obtain seizure response dogs to assist in keeping their family members safe. Our goal is to raise funds to assist in the placement of one animal per year.