STOMP West Virginia

Saturday, September 23, 2017  @  1:00 PM

Address:

State Road 55, Baker, WV    view map

Description:

Join us at Baker Park in Baker, West Virginia on September 23, 2017 for the STOMP Out Epilepsy and SUDEP Awareness Walk/Run.  This is an informal walk hosted by friends of CHF and you are invited to join them.  Funds raised by this Foundation provide funds for fully-trained seizure-response dogs, life-saving movement monitors for those in need and grant wish trips to Epilepsy Awareness Expo and Day at Disneyland.  If you can't walk or run with us, consider registering as a virtual walker to show your support. Create your own team and raise funds and awareness for The Chelsea Hutchison Foundation.  #STOMPWestVirginia

Check-in and Walk-up Registration begins at 1:00 PM. Walk/Run begins at 2:00 PM. 

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Features:

 Food and Drinks

 Music

 Kids' Activities

 

Parking:

Plenty of free parking.

About us

The Chelsea Hutchison Foundation is a non-profit corporation formed to provide help and support to individuals, particularly children and young adults, who have epilepsy. Chelsea touched many lives during her short 16 years here and we are amazed at how many people she continues to touch through the foundation even after her passing.  Her generous heart longed to see love and care come to others.

In her memory The Chelsea Hutchison Foundation is designed to assist people living with Epilepsy.  Funds raised by this Foundation provide grants for seizure-response dogs and epilepsy monitors for those in need, educate the public about SUDEP (Sudden Unexpeccted Death in Epilepsy), and provide support to those who have been affected by SUDEP.  The Chelsea Hutchison Foundation exists to raise awareness of SUDEP and to grant comfort, hope and positivity to individuals and families living with epilepsy.  To date, The Chelsea Hutchison Foundation has had the privilege of providing 101 seizure-response dog grants and has provided over 420 life-saving night-time and day-time movement monitors for those in need.  We have awarded 30 families with wish trips to the one-of-a-kind Epilepsy Awareness Expo and Day at Disneyland. The Expo offers a wealth of information and exposure to professionals, treatment options, education and hope.   

You may ask why we provide grants for these items.  These monitors, while life-saving, are not covered by any insurance companies.  Seizure response service dogs are expensive and most of our families have to raise significant money to obtain one.  Imagine caring for a loved-one with epilepsy 24/7 and being afraid to sleep for fear they might miss a seizure, or worse yet, THAT seizure that is fatal.  Chelsea’s family believes strongly that if they had known to monitor Chelsea at night – and had the means to afford one of these expensive items – their outcome may have been different.  Chelsea’s first nocturnal seizure took her life.

During the 6 years that Chelsea had seizures, no one ever told the Hutchisons that a seizure could take her life other than through an accidental fall or drowning. As a result of that omission, The Chelsea Hutchison Foundation informs those living with epilepsy of the risks and raises awareness of SUDEP so that no other families are blind-sided. For more information, please visit our website at www.ChelseaHutchisonFoundation.org or contact us directly at ChelseasLegacy2@gmail.com

Registration info:

Fee guarantees an event tshirt if registering before August 15, 2017.  We always order more, but after that, tshirts and t-shirt sizes are subject to availability.  Walk Day Registration is $35 Adult (13 and up) and $20 Children 7-12.  Pets are welcome as long as they are leashed at all times and picked up after.  Service dogs welcomed and encouraged.

Options:

• Adult WALKER/RUNNER (13 and up)

$30.00    Expires 9/22/2017 11:59 PM

• Child WALKER/RUNNER (7-12)

$15.00    Expires 9/22/2017 11:59 PM

• T-Shirt for Child (6 and under)

$10.00    Expires 9/22/2017 11:59 PM

 

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